Adult Leadership Cooperative – FASD Changemakers
Leadership Through
Lived Experience
We are adults with Fetal Alcohol Spectrum Disorder using our voices, experiences, and research to create understanding and lasting change.
Who We Are
Nothing about us without us
Our international cooperative brings together adults with FASD from different countries, cultures, families, careers, and walks of life. We are parents, partners, researchers, professionals, advocates, and community members. No single story represents everyone with FASD – together, our perspectives create a fuller picture.
How We Create Change
Our Voices
We tell our own stories and challenge outdated assumptions about life with FASD.
Research
We help shape research questions, interpret findings, and author work grounded in lived experience.
Systems Change
We work with communities, professionals, and decision-makers to build greater understanding and inclusion.
Speaking and Events
Bring lived-experience leadership to your event
Changemakers are available individually or together for conferences, panels, workshops, webinars, classrooms, podcasts, professional training, and community conversations.
- Living and thriving with FASD
- Parenting, relationships, identity, and life choices
- Accessibility and effective support
- Citizen-led research and inclusive research practice
- Challenging stereotypes and changing systems
Planning an event?
Tell us about your audience, date, format, and the voices or topics you hope to include.
A speaker-request form will be added here as the Contact page is completed.
Our experience is knowledge
We contribute to research and advocacy that starts with the priorities, questions, and realities of people living with FASD.
Start a conversation with us
Invite the Changemakers to speak, collaborate on research, contribute to training, or share lived-experience leadership with your community.
Contact details and an accessible inquiry form will be connected when the Contact page is created.