Discover Our Journey
Empowering Change Through Experience
Explore the history and impact of ALC FASD Changemakers, a pioneering group dedicated to fostering a world where individuals with FASD can thrive.
Our Story and Mission
ALC FASD Changemakers began as a small collective of individuals united by a shared experience and a vision for change. Over the years, we have grown into a respected group of citizen researchers and advocates, each living with Fetal Alcohol Spectrum Disorder (FASD). Our mission is to harness the power of lived experience to drive meaningful change and create opportunities for all individuals with FASD. Through partnerships and collaborations, we strive to build a supportive community that respects and values every voice. Our achievements include groundbreaking surveys and research that have influenced policies and practices worldwide.
Our Milestones
Trace the significant events that have shaped ALC FASD Changemakers and our contributions to the FASD community.
2015
Formation of ALC FASD Changemakers
A group of passionate individuals with FASD came together to form a collective focused on advocacy and research.
2017
First Community Workshop
Hosted our inaugural workshop, bringing together experts and community members to discuss FASD challenges and solutions.
2020
Publication of First Survey
Released our first major survey on the health of 500 adults with diagnosed FASD, gaining significant attention from researchers and policymakers.
2022
International Collaboration
Partnered with global organizations to expand our research and advocacy efforts beyond national borders.
2024
Second Survey Published
Completed and published a comprehensive survey on the quality of life of 450 adults with FASD, furthering our impact in the field.
2025
Ongoing Research Initiatives
Launched new research projects focused on service and support systems for adults with FASD, continuing our commitment to evidence-based advocacy.
Our Core Values
Guiding Principles of ALC FASD Changemakers
At ALC FASD Changemakers, we are driven by a commitment to inclusivity and respect for every voice. Our guiding principles emphasize the importance of collaboration, ensuring that all experiences are valued and welcomed. We believe in the dignity of every individual with FASD, recognizing that support must be tailored to meet diverse needs. Our group fosters a safe environment where meaningful partnerships thrive, and mutual respect is paramount. By working together, we strive to create impactful change and a brighter future for all.
Meet Our Changemakers
Our team at ALC FASD Changemakers is a diverse group of dedicated individuals, each bringing unique experiences and expertise to our mission. Together, we leverage our lived experiences to drive meaningful change and advocate for those with FASD.
Alex Johnson
Lead Researcher
Jamie Lee
Community Outreach Coordinator
Morgan Smith
Advocacy Specialist
Taylor Brown
Program Development Manager
Voices of Impact
“Being part of ALC FASD Changemakers has transformed my life. The support and understanding I receive here are unparalleled.”
Jordan White
Peer Mentor
“This group has given me a platform to share my story and make a difference. I’ve found a community that truly understands and values my experiences.”
Casey Green
Advocate
“The collaboration and respect within ALC FASD Changemakers have empowered me to grow and help others. It’s a safe space where every voice matters.”
Riley Taylor
Research Assistant
“Joining ALC FASD Changemakers has been a journey of empowerment. I’ve learned to harness my experiences to contribute to meaningful change.”
Jordan Lee
Community Liaison
Join Us in Making a Difference
We invite you to be part of our journey at ALC FASD Changemakers. Share your experiences, collaborate on projects, or support our mission to empower individuals with FASD. Together, we can create meaningful change and foster a world where everyone thrives. Your voice matters, and your involvement can make a significant impact.