Exploring the Impact of FASD: A Journey Through Research
Discover the groundbreaking research conducted by ALC FASD Changemakers, shedding light on health and quality of life for adults with FASD.
Health Survey Insights
Unveiling the health challenges and triumphs faced by adults with FASD.
Quality of Life Study
Examining the factors that contribute to a fulfilling life for individuals with FASD.
Our Mission and Vision
ALC FASD Changemakers is a pioneering group of citizen researchers dedicated to enhancing the lives of individuals with FASD. Our mission is to leverage the lived experiences of adults with FASD to foster partnerships and drive meaningful change. We are committed to creating a world where all people with FASD thrive, by valuing every voice and experience, and promoting dignity and support for all.
What Our Community Says
★★★★★
“The research conducted by ALC FASD Changemakers has been transformative. It has provided invaluable insights into the challenges and needs of adults with FASD, helping us to better support them.”

Dr. Emily Johnson
Research Collaborator
★★★★★
“Working with the ALC FASD Changemakers has been an eye-opening experience. Their dedication to using lived experiences to guide research is truly inspiring.”

Michael Smith
Community Advocate
Current Research Focus
Our ongoing research delves into the utilization of both funded services and unfunded supports among adults diagnosed with Fetal Alcohol Spectrum Disorder (FASD). This project aims to identify gaps and opportunities in service provision, ensuring that individuals with FASD receive the comprehensive support they need to thrive. By analyzing the patterns of service use, we hope to provide insights that will inform policy and improve the quality of life for those affected.
Collaborative Efforts
Strategic Partnerships
Collaboration is at the heart of our research endeavors. By partnering with leading institutions and organizations, we amplify our impact and drive meaningful change. Our strategic partnerships allow us to leverage diverse expertise and resources, ensuring that our research is robust and comprehensive.
Community Engagement
Engaging with the community is crucial for the success of our projects. We actively involve stakeholders at every stage of the research process, fostering a sense of ownership and ensuring that our findings are relevant and actionable.
Interdisciplinary Research
Our interdisciplinary approach brings together experts from various fields to address complex issues related to FASD. This collaborative method enhances the depth and breadth of our research, leading to innovative solutions and improved outcomes.
Knowledge Sharing
We believe in the power of knowledge sharing to drive progress. Through workshops, seminars, and publications, we disseminate our findings to a wide audience, encouraging dialogue and inspiring action across sectors.
Voices of Impact
★★★★★
“Participating in the ALC FASD Changemakers’ research has been a transformative experience. The insights gained have not only informed our practices but have also empowered us to advocate for better support systems.”
Dr. Emily Thompson, Research Collaborator
★★★★★
“The dedication and expertise of the ALC FASD Changemakers are truly inspiring. Their work is paving the way for a brighter future for individuals with FASD.”
Michael Rivera, Community Partner
★★★★★
“Being part of this research initiative has opened my eyes to the challenges and triumphs faced by those with FASD. It’s a privilege to contribute to such impactful work.”
Sarah Lee, Project Participant
