About the Cooperative
Leadership shaped by living experience
We are adults with Fetal Alcohol Spectrum Disorder working together to lead conversations, contribute to research, and create meaningful change.
Who We Are
Many lives. Many perspectives. One shared purpose.
The Adult Leadership Cooperative – FASD Changemakers is an adult-led group of people with FASD. Our members bring different cultures, countries, families, careers, relationships, and life choices to the work. We are parents and nonparents, researchers and storytellers, professionals and community advocates.
Our experiences are not identical, and no one member speaks for every person with FASD. By working together, we create a richer and more honest understanding of adult life with FASD.
What Connects Us
Lived Experience Leads
People with FASD should help lead the decisions, research, and conversations that affect our lives.
Difference Is a Strength
We value different communication styles, identities, abilities, choices, cultures, and ways of contributing.
Change Through Collaboration
We work with one another and with communities, researchers, professionals, and decision-makers.
Featured Changemakers
Meet the Changemakers
The cooperative includes additional members. These four profiles are our currently confirmed starting set, and more Changemakers will be added as names, headshots, and biographies are confirmed.
CJ
Headshot for CJ Lutke
CJ Lutke
Brief biography to be supplied or approved by CJ. Suggested length: 60-90 words.
MM
Headshot for Maggie May
Maggie May
Brief biography to be supplied or approved by Maggie. Suggested length: 60-90 words.
EH
Headshot for Emily Hargrove
Emily Hargrove
Brief biography to be supplied or approved by Emily. Suggested length: 60-90 words.
CY
Headshot for Carl Young
Carl Young
Brief biography to be supplied or approved by Carl. Suggested length: 60-90 words.
Our stories are different. Our leadership is shared.
Together, we use what we have learned through living with FASD to help build greater understanding, inclusion, and opportunity.