Your information matters
Privacy Policy
ALC FASD Changemakers respects your privacy. This page explains what information this website may collect, why we use it, and the choices you have.
Last updated: August 5, 2026
The short version
We use information you send through our contact form to respond to you and consider opportunities. We do not sell your personal information. Please do not send medical records or other highly sensitive information through the website.
Who we are
ALC FASD Changemakers is an international group of adults with Fetal Alcohol Spectrum Disorder who use lived experience, storytelling, advocacy, and research to improve understanding of FASD. Our website address is https://alcfasdchangemakrs.org/.
Information we may collect
- Information you provide: When you use our contact form, you may provide your name, email address, organization, event or inquiry details, and anything else you include in your message.
- Basic technical information: Our website host, security tools, and server logs may process information such as your IP address, browser type, device type, referring page, and the date and time of a visit.
- Cookies: WordPress and its plugins may use cookies that are necessary for site operation, security, or administrator login. We will update this policy if we add analytics, advertising, or other non-essential tracking tools.
How we use information
- To respond to questions, speaking invitations, research inquiries, and collaboration requests
- To plan meetings, presentations, events, or projects you ask us about
- To protect the website, prevent spam or abuse, and diagnose technical problems
- To meet legal, safety, or administrative responsibilities when necessary
Contact forms and email
Our contact form uses Contact Form 7. Information submitted through the form is sent by email to people authorized to respond on behalf of ALC FASD Changemakers. The website, email provider, hosting provider, or security and spam-prevention services may process the submission while delivering and protecting it.
Please share only what is needed for your inquiry. Do not send medical records, government identification numbers, financial details, or confidential information through the contact form.
When information may be shared
We do not sell your personal information. Information may be available to a small number of authorized Changemakers or administrators who need it to respond. It may also be processed by service providers that support website hosting, email delivery, spam prevention, security, and maintenance. We may disclose information if required by law or when reasonably necessary to protect people, rights, or the website.
How long we keep information
We aim to keep personal information only as long as reasonably needed to answer an inquiry, manage a relationship or project, maintain appropriate records, protect the website, or meet legal obligations. Retention may vary depending on the reason the information was collected and where it is stored.
External links and embedded content
This site links to research publishers, academic databases, organizations, and other websites. An external website has its own privacy practices, which we do not control. Embedded content, if added in the future, may behave as though you visited the provider’s website directly.
Your choices and privacy requests
Depending on where you live, you may have rights to ask what personal information we hold about you, request a correction or deletion, object to certain uses, or withdraw consent. These rights are not absolute and may depend on applicable law. To make a request, use our Contact Us page. We may need to confirm your identity before acting on a request.
International visitors
ALC FASD Changemakers and the people who contact us may be located in different countries. Information sent through the website may therefore be processed in a country other than your own, including where our website, email, or service providers operate.
Children’s privacy
The contact form is intended for adults, organizations, researchers, and event contacts. If you believe a child has submitted personal information without appropriate permission, please contact us so we can review and, where appropriate, remove it.
Security
We take reasonable steps to protect information, but no website, email system, or method of transmission can be guaranteed completely secure. Please consider this before sending personal information online.
Changes to this policy
We may update this policy when the website, our services, or privacy requirements change. The date at the top of this page will show when it was last revised.
Questions about privacy?
Contact us if you have a question about this policy or want to make a privacy request.